Showing posts with the label mother and son

1 year after Juvenile Dermatomyositis

We have crossed the "1st year anniversary" from the time we got J's diagnosis. He has had Juvenile Dermatomyositis  (JDM) for over a year now, and at this point, we cannot be more thankful for him to have come this far of absolutely showing no signs of his illness. And earlier this month,  we marked the last day he needs to take any prednisone (steroids) His illness is still active, and we are working hard to help him reach remission. In the meantime, we are also seizing every opportunity to let him enjoy his childhood as we were told even after remission, the odds of it relapsing is 60%. The events leading up to his diagnosis can be found here.  I recalled when I wrote that post, I was still overwhelmed with emotions. We didn't know who to listen to and what kind of monster we were facing. Whatever we could find on Dr. Google pointed to this being a battle for years. For some kids, it is a lifetime. But, we are super super grateful of his pediatrician and

Bucket List with my 3 year old

So I shared this post on my facebook pos t last week, and I thought about creating one for J and myself as well. Being the only child, J is our first priority. While both the man and I work full time, we make it point to put J above everything else.